Special Needs Resources

“You can’t hold in a sneeze or a cough forever, that’s how hard it is to stop. It’s not because I want to, it’s because I have to.” --Boy in HBO Special: I have Tourette’s, but Tourette’s Doesn’t Have Me.

Mommie911.com and ZiggityZoom.com are participating in the Model Me Kids Autism Awareness Blog Tour being held April 1-12 during Autism Awareness Month.

We want to help children with Autism and their families by providing resources, articles and products that can help, teach, or make life easier for kids with Autism and/or their families.

On April 2 we will be posting Questions about Autism and Model Me Kids and the Answers given by Model Me Kids President, Sue Klein.

I will also be reviewing one of the Model Me Kids DVDs and we will be doing a Model Me Kids Giveaway to 1 reader that leaves a comment.

Please check back for more updates, articles and visit us on April 2nd to support Autism Awareness.

The more voices that stand united the louder we can make our message to Support Autism Research, Treatments, and Support.

April 2: Mommie911

Information about Urine Porphyrin Profile Analysis Testing

Recently the UPPA tested has been shown to be the most effective test in looking at heavy metal levels in children with Autism. Several reports have explained why blood and urine tests do not show if a child's body has high levels of heavy metals. For one, it has been shown that children with Autism have difficulty excreting heavy metals from their bodies, which would mean they would not be excreting the metals in urine, feces, hair and blood in levels that are found in their body tissues.

The average cost for the porphyrin test is between $100-150.00 for the test, you will also have to pay for shipping charges and any additional health care/doctor charges.

Your health care provider and/or the lab you are requesting the test from, should give you very specific directions. However there are 2 important things you should know that you do not want to over look, or else the results will be altered.

1. Porphyrins are Light Sensitive

2. Porphyrins are Temperature Sensitive

Collect the Sample in a Low Light Room and use a plastic light opaque container (often amber brown colored).

The accuracy of the results are also based on getting and keeping the urine sample out of light, minimizing air expose (sealing sample container) and keeping sample at proper temperature (which lab or doctor should explain).
There are many labs that can run this analysis, but 2 of the labs that are often recommended because results have be cross checked for accuracy are:

Labcorp (in US) or
Laboratoire Phillipe Auguste (in France)-see below for more information on these labs.

Where to Get a Reliable UPPA Test

In 2004, the American Academy of Pediatrics and the National Institute of Health and Human Services stated that1 in 150 children have an autistic disorder and 1 in 6 children have a developmental or behavioral disorder.

These are staggering statistics that should concern every parent, grandparent, doctor, clinician, and public or government official. This equates to a fourfold increase in just a decade.

Our country is in a crisis. We have ignored the red flags, the calls for concerns from parents and advocates, and we have created a generation of developmentally and behaviorally disabled children. The writing is on the wall, and yet not nearly enough is being done to research the cause and prevent this crisis from continuing or to treat our children who are suffering.

Mercury Overload ?

Still, the Institute of Medicine has ruled that no relationship exists between thimerosal and autism, and that no further studies are needed to look into the possibility of a relationship between thimerosal containing vaccines and autism. Many other studies have concluded there is a possible connection between the TCVs and autism. Why would such a strong statement be made in regards to doing no further research when we know mercury and other metals are toxic. We know mercury was in vaccines, and is still in some, so why would we risk the health of millions of children by not continuing to study the connection between all types of mercury exposure, including thimerosal, and developmental disorders in children.